Whitney was diagnosed with Aplastic Anaemia in 2004 when she was 11 years old, and in 2010 developed Paroxysmal Nocturnal Haemoglobinuria (PNH), a rare disease of the bone marrow. The fatiguing symptoms of Whitney's condition didn't stop her from actively collecting over 20000 signatures in a petition, requesting that the Federal Government include Soliris®, the drug required for the treatment of PNH, on the Pharmaceutical Benefits Scheme (PBS).
At just 19 years of age, Whitney successfully lobbied the Government and showed Australians, suffering from rare and life-threatening illnesses, that it is possible to access the same life-saving treatments as those with more common conditions. She underwent a bone marrow transplant on 18 April 2012. However, due to complications with the process, Whitney sadly passed away on 5 May 2012.